Patient Engagement
In recent years, the Patient-Centered Outcomes Research Institute (PCORI) has led the charge in redefining how research is conducted by prioritizing meaningful patient engagement. By embedding patients and stakeholders as active partners, PCORI has ensured that research outcomes resonate with real-world needs. Below, we outline the key benchmarks PCORI has established for patient engagement in research and how they shape the research landscape.
1. Foundational Expectations for Partnerships in Research
PCORI’s six foundational expectations act as a framework for building effective and sustainable engagement with patients, communities, and other research partners. These benchmarks emphasize co-learning, respect, and shared decision-making across all phases of research.
To learn more about these expectations, visit PCORI’s foundational guide: https://www.pcori.org/engagement-research/engagement-resources
2. Engagement Plan Requirements
PCORI mandates that all research funding applicants submit a comprehensive Engagement Plan. This document details how patient and stakeholder involvement will be integrated into the study design, implementation, and dissemination. The plan is reviewed to ensure alignment with PCORI’s patient-centered research principles.
For resources on crafting an Engagement Plan, check out PCORI’s template: https://www.pcori.org/engagement-research/engagement-resources
3. Compensation Framework for Partners
Acknowledging the valuable time and expertise of patients and caregivers, PCORI has developed a Compensation Framework. This guideline ensures equitable compensation for all levels of engagement, fostering trust and long-term collaboration.
Details on PCORI’s Compensation Framework can be found here: https://www.pcori.org/engagement-research/engagement-resources
4. Engagement Tool and Resource Repository
To support researchers in their engagement efforts, PCORI maintains a searchable repository of tools and resources. Developed by awardees, these materials highlight best practices and lessons learned, serving as a valuable resource for advancing patient-centered outcomes research (PCOR).
Explore PCORI’s repository of engagement tools here: https://www.pcori.org/engagement/engagement-resources/Engagement-Tool-Resource-Repository
PCORI’s Impact on Research
By setting clear benchmarks and providing robust resources, PCORI has transformed the traditional research paradigm. Its commitment to patient engagement not only ensures that studies are relevant and actionable but also builds trust and inclusivity in research communities. Researchers and stakeholders alike can look to PCORI as a leader in fostering a collaborative and patient-centered research ecosystem.
For more information about PCORI’s initiatives and how they can enhance your research, visit their website: https://www.pcori.org.
This post was developed with the assistance of ChatGPT, a language model by OpenAI.