The Rule, Not the Exception
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Reading a Study Like It’s About You
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Getting to Know Sharon Waldrop
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The Legs of the Operation
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Engagement gets you a seat. Empowerment gets you a vote.
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From Guest, to Producer, to Host
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Finding the Real Ones
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The Month That Started Anyway
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Every Glossary Translates. Ours Also Warns.
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Pain in L.A. or Pain in Paris
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Two Voices, One Table
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Lend a Hand
Lend a Hand The Los Angeles Chronic Pain Support Group is trying to carry what the room knows a little farther. That takes hands. Yes to one job is enough. Nobody has to be good at this yet. This form goes to Tom and nobody else. It is not the anonymous Tuesday Voices form. This…
PWLE Voices – Issue 2
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How to Actually Read the ENGAGE Report
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A Table You Can Actually Sit At: The ENCompaSS Trial
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“I Put on an Extrovert Suit”
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Getting to Know Michele Rice
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Who Sets the Standard? Compensation for Lived Experience
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The Long Game
Why patient engagement won’t be fixed by Friday I have lived with chronic pain for more than 37 years. I have facilitated a peer support group in Los Angeles for 27 of them. You learn something when your work is measured in decades instead of quarters. You learn that the things most worth changing rarely…
The Man on My Wall
On comparing yourself to the person you used to be Ever compare yourself to the person you used to be? I don’t have to imagine him. He hangs on my wall. A wall full of medals and certificates, framed and dated, every one of them saying the same thing: this man was competent at his…