Los Angeles Chronic Pain
Support and advocacy information for individuals dealing with chronic pain.
Author: paintom
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Protected: Getting to Know Rebecca Share-Howard
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Protected: Getting to Know Virginia McIntyre
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Protected: Say It First
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Engagement gets you a seat. Empowerment gets you a vote.
PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Informed — Field Report Engagement Gets You a Seat. Empowerment Gets You a Vote. The Camden Coalition took the worst news an organization can get from its own research — and answered it by handing more power to the people it serves.…
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The Legs of the Operation
PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Spotlight The Legs of the Operation Cynthia spent her life on a stage. John never planned to be a caregiver. Forty-six years later they are still here — and still teaching the rest of us what lived experience, and care, actually look like.…
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The Rule, Not the Exception
PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Researcher Spotlight The Rule, Not the Exception A conversation with Katie Holzer, clinical social worker and pain researcher at Washington University in St. Louis, on what it takes for a person with pain to be on the team from the first day. By…
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Getting to Know Sharon Waldrop
PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Meet a Fellow PWLE Getting to Know Sharon Waldrop Nearly thirty years after a doctor threw a brochure at her and left the room, Sharon runs the support group, the awareness day, and the podcast she once needed to find. Co-authored by Sharon…
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Reading a Study Like It’s About You
PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Reading a Study Like It’s About You A clinician and a person living with the condition can read the same paper and look for entirely different things. Here is a free tool for appraising a study —…
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Two Voices, One Table
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Meet a Fellow PWLE Two Voices, One Table Penney Cowan built one of the country’s first peer networks for people with chronic pain out of her garage. Scott Cowan paid for the phone line and supported her every step of the way.…
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Pain in L.A. or Pain in Paris
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Care Partner Corner Pain in L.A. or Pain in Paris More than thirty-six years beside a husband who lives with chronic pain — and a word she chose for her place on the team: not caregiver, but care partner. Where I sit…
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Every Glossary Translates. Ours Also Warns.
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Every Glossary Translates. Ours Also Warns. There are good glossaries for understanding a study. This one is for understanding a room. At a Glance What it is: The PWLE Patient Engagement Glossary — 205 entries plus…
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The Month That Started Anyway
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Informed — Research Update The Month That Started Anyway Pain Awareness Month was built to make invisible pain visible. Twenty-five years on, the evidence says visibility was only ever the first step — and the woman who built it knew that…
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Finding the Real Ones
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Finding the Real Ones Trusted messengers can help a clinical trial at every phase — if researchers and people with lived experience can find each other first. A disclosure before you read The gap I describe…
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From Guest, to Producer, to Host
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Worth a Listen · Installment One · A continuing article From Guest, to Producer, to Host Three shows, arranged on purpose. In the first we are the guest. In the second we make the show. In the third we run it. There…
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Protected: Happy Birthday
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