Los Angeles Chronic Pain
Support and advocacy information for individuals dealing with chronic pain.
Author: paintom
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Finding the Real Ones
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Finding the Real Ones Trusted messengers can help a clinical trial at every phase — if researchers and people with lived experience can find each other first. A disclosure before you read The gap I describe…
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From Guest, to Producer, to Host
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Worth a Listen · Installment One · A continuing article From Guest, to Producer, to Host Three shows, arranged on purpose. In the first we are the guest. In the second we make the show. In the third we run it. There…
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Protected: From Numbers to Ink
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Protected: Two and Two in the Room
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Protected: Who Pays for the Study?
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Lend a Hand
Lend a Hand The Los Angeles Chronic Pain Support Group is trying to carry what the room knows a little farther. That takes hands. Yes to one job is enough. Nobody has to be good at this yet. This form goes to Tom and nobody else. It is not the anonymous Tuesday Voices form. This…
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Protected: One Group in Thirty-Eight
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How to Actually Read the ENGAGE Report
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Series Tools & Resources How to Actually Read the ENGAGE Report Forty-three pages of NIH report, distilled down to the parts a PWLE advocate can actually use. In Issue 1, we introduced the November 2025 NIH ENGAGE report and explained why it…
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PWLE Voices – Issue 2
Pain Awareness Month (1/6) · Issue 2 · 2026 · September 2026 September Is Pain Awareness Month First of six · One community, many conditions. What’s a PWLE? A Person With Lived Experience. The NIH’s November 2025 ENGAGE report describes people and communities partnering with researchers to shape the questions that get asked, the studies…
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Who Sets the Standard? Compensation for Lived Experience
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Series Stay Informed — Research Update Who Sets the Standard? Compensation for Lived Experience There is no national rule for paying PWLE advisors and partners. Here’s where the standards actually come from — and where the leverage sits. My stake in this…
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Getting to Know Michele Rice
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Series PWLE Spotlight Getting to Know Michele Rice Twenty-six years after a wet floor changed everything, the Community Engagement Lead at the U.S. Pain Foundation talks about what advocacy from a bed taught her — and what she’s still learning about lived…
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“I Put on an Extrovert Suit”
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Voices in the Room “I Put on an Extrovert Suit” A first-time PWLE attendee on the NIH PURPOSE conference and the U.S. Association for the Study of Pain (USASP) annual meeting — walking in, what changed, and what he’s bringing home. By…
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A Table You Can Actually Sit At: The ENCompaSS Trial
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Stay Engaged — Open Call A Table You Can Actually Sit At: The ENCompaSS Trial A PCORI-funded study of chronic back pain care is built around Veterans — and it’s looking for more lived experience to help shape it. Where I sit…
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Protected: The One Who Said Yes
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Protected: Tell Me Three Things About the Person
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