Los Angeles Chronic Pain
Support and advocacy information for individuals dealing with chronic pain.
Category: Uncategorized
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Protected: PWLE Voices – Issue 4
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Protected: Reading a Study Like It’s About You
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Protected: Getting to Know Sharon Waldrop
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Protected: The Legs of the Operation
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Protected: Engagement gets you a seat. Empowerment gets you a vote.
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Protected: A Table You Can Actually Sit At: The ENCompaSS Trial
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Protected: Who Sets the Standard? Compensation for Lived Experience
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Protected: “I Put on an Extrovert Suit”
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Protected: Getting to Know Michele Rice
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The Long Game
Why patient engagement won’t be fixed by Friday I have lived with chronic pain for more than 37 years. I have facilitated a peer support group in Los Angeles for 27 of them. You learn something when your work is measured in decades instead of quarters. You learn that the things most worth changing rarely…
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The Man on My Wall
On comparing yourself to the person you used to be Ever compare yourself to the person you used to be? I don’t have to imagine him. He hangs on my wall. A wall full of medals and certificates, framed and dated, every one of them saying the same thing: this man was competent at his…
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Two Emergencies at Once: Earthquake and Wildfire Readiness When You Live with Chronic Pain or a Chronic Condition
For most people, an earthquake or a wildfire is a single emergency — the ground moves, or the air turns to smoke, and then the long work of recovery begins. For those of us living with chronic pain or a chronic condition, it is almost always two emergencies stacked one on top of the other.…
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The Scale That Asks What You Can Do
How the ACPA Quality of Life Scale measures the day, not the hurt. Every person living with chronic pain knows the question. You walk into the clinic, you sit down on the paper-covered table, and someone asks you to rate your pain from zero to ten. I have answered that question for thirty-seven years. I…
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The Science Speaks for Itself
A clinician said that recently. I have been thinking about it ever since. Someone passed along a remark a clinician had made. The question was whether patients belong in the room where research gets designed. The clinician’s answer was clean and confident: they did not need to hear from the patient. The science speaks for…