Category: Uncategorized

  • The Rule, Not the Exception

    PWLE Voices  ·  Issue 4  ·  September 2026  ·  Pain Awareness Month Researcher Spotlight The Rule, Not the Exception A conversation with Katie Holzer, clinical social worker and pain researcher at Washington University in St. Louis, on what it takes for a person with pain to be on the team from the first day. By…

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  • Engagement gets you a seat. Empowerment gets you a vote.

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Informed — Field Report Engagement Gets You a Seat. Empowerment Gets You a Vote. The Camden Coalition took the worst news an organization can get from its own research — and answered it by handing more power to the people it serves.…

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  • The Legs of the Operation

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Spotlight The Legs of the Operation Cynthia spent her life on a stage. John never planned to be a caregiver. Forty-six years later they are still here — and still teaching the rest of us what lived experience, and care, actually look like.…

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  • Getting to Know Sharon Waldrop

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Meet a Fellow PWLE Getting to Know Sharon Waldrop Nearly thirty years after a doctor threw a brochure at her and left the room, Sharon runs the support group, the awareness day, and the podcast she once needed to find. Co-authored by Sharon…

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  • Reading a Study Like It’s About You

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Reading a Study Like It’s About You A clinician and a person living with the condition can read the same paper and look for entirely different things. Here is a free tool for appraising a study —…

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  • Protected: The First Page Is the Whole Point

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  • Finding the Real Ones

    ‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Finding the Real Ones Trusted messengers can help a clinical trial at every phase — if researchers and people with lived experience can find each other first. A disclosure before you read The gap I describe…

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  • From Guest, to Producer, to Host

    ‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Worth a Listen · Installment One · A continuing article From Guest, to Producer, to Host Three shows, arranged on purpose. In the first we are the guest. In the second we make the show. In the third we run it. There…

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  • Protected: Happy Birthday

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  • Protected: Happy Birthday

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  • Protected: Happy Birthday

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  • Protected: From Numbers to Ink

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  • Protected: Two and Two in the Room

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  • Protected: Who Pays for the Study?

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  • Protected: Three Shows, and What It Takes to Keep One On

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