Category: Uncategorized

  • Getting to Know Laura Wandner

    PWLE Voices  ·  Issue 5  ·  September 21, 2026 Pain Awareness Month  ·  Fourth in a Series of Six Stay Connected  ·  Meet a Fellow PWLE Getting to Know Laura Wandner She lived with chronic pain while working inside the agency that funds pain research. What she saw from that side of the table —…

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  • The One They Started With

    PWLE Voices  ·  Issue 5  ·  September 21, 2026 Pain Awareness Month  ·  Fourth in a Series of Six Stay Informed  ·  Research Update The One They Started With NIH accepted every ENGAGE recommendation in December. The first one it built a public process around was telling participants what the study found. The draft policy…

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  • “There’s No Budget”: What to Ask for Instead

    PWLE Voices  ·  Issue 5  ·  September 21, 2026 Pain Awareness Month  ·  Fourth in a Series of Six Stay Empowered  ·  Tools & Resources “There’s No Budget”: What to Ask for Instead When a project cannot pay you, that does not mean your time is free. What to ask for instead — and how…

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  • Protected: The Societies

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  • When the Credential and the Diagnosis Sit in the Same Person

    PWLE Voices  ·  Issue 7  ·  October 5, 2026 Carrying September Forward  ·  Sixth in a Series of Six Stay Empowered  ·  Worth a Listen  ·  Installment Three  ·  A continuing article When the Credential and the Diagnosis Sit in the Same Person Two fibromyalgia shows made by people who have it. One host is…

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  • Engagement gets you a seat. Empowerment gets you a vote.

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Informed — Field Report Engagement Gets You a Seat. Empowerment Gets You a Vote. The Camden Coalition took the worst news an organization can get from its own research — and answered it by handing more power to the people it serves.…

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  • The Legs of the Operation

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Spotlight The Legs of the Operation Cynthia spent her life on a stage. John never planned to be a caregiver. Forty-six years later they are still here — and still teaching the rest of us what lived experience, and care, actually look like.…

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  • Getting to Know Sharon Waldrop

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Meet a Fellow PWLE Getting to Know Sharon Waldrop Nearly thirty years after a doctor threw a brochure at her and left the room, Sharon runs the support group, the awareness day, and the podcast she once needed to find. Co-authored by Sharon…

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  • Reading a Study Like It’s About You

    PWLE Voices · Issue 4 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Reading a Study Like It’s About You A clinician and a person living with the condition can read the same paper and look for entirely different things. Here is a free tool for appraising a study —…

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  • The Rule, Not the Exception

    PWLE Voices  ·  Issue 4  ·  September 2026  ·  Pain Awareness Month Researcher Spotlight The Rule, Not the Exception A conversation with Katie Holzer, clinical social worker and pain researcher at Washington University in St. Louis, on what it takes for a person with pain to be on the team from the first day. By…

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  • Finding the Real Ones

    ‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Finding the Real Ones Trusted messengers can help a clinical trial at every phase — if researchers and people with lived experience can find each other first. A disclosure before you read The gap I describe…

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  • From Guest, to Producer, to Host

    ‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Worth a Listen · Installment One · A continuing article From Guest, to Producer, to Host Three shows, arranged on purpose. In the first we are the guest. In the second we make the show. In the third we run it. There…

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  • Protected: From Numbers to Ink

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  • Protected: Two and Two in the Room

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  • Protected: Who Pays for the Study?

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