Los Angeles Chronic Pain
Support and advocacy information for individuals dealing with chronic pain.
Category: PWLE Voices
-
The Month That Started Anyway
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Informed — Research Update The Month That Started Anyway Pain Awareness Month was built to make invisible pain visible. Twenty-five years on, the evidence says visibility was only ever the first step — and the woman who built it knew that…
-
Two Voices, One Table
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Meet a Fellow PWLE Two Voices, One Table Penney Cowan built one of the country’s first peer networks for people with chronic pain out of her garage. Scott Cowan paid for the phone line and supported her every step of the way.…
-
Pain in L.A. or Pain in Paris
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Care Partner Corner Pain in L.A. or Pain in Paris More than thirty-six years beside a husband who lives with chronic pain — and a word she chose for her place on the team: not caregiver, but care partner. Where I sit…
-
Every Glossary Translates. Ours Also Warns.
‹ PWLE Voices — Issue 3 · September 2026 · Pain Awareness Month Stay Empowered — Tools & Resources Every Glossary Translates. Ours Also Warns. There are good glossaries for understanding a study. This one is for understanding a room. At a Glance What it is: The PWLE Patient Engagement Glossary — 205 entries plus…
-
“I Put on an Extrovert Suit”
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Voices in the Room “I Put on an Extrovert Suit” A first-time PWLE attendee on the NIH PURPOSE conference and the U.S. Association for the Study of Pain (USASP) annual meeting — walking in, what changed, and what he’s bringing home. By…
-
How to Actually Read the ENGAGE Report
‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Series Tools & Resources How to Actually Read the ENGAGE Report Forty-three pages of NIH report, distilled down to the parts a PWLE advocate can actually use. In Issue 1, we introduced the November 2025 NIH ENGAGE report and explained why it…
-
PWLE Voices – Issue 2
Pain Awareness Month (1/6) · Issue 2 · 2026 · September 2026 September Is Pain Awareness Month First of six · One community, many conditions. What’s a PWLE? A Person With Lived Experience. The NIH’s November 2025 ENGAGE report describes people and communities partnering with researchers to shape the questions that get asked, the studies…