Support and advocacy information for individuals dealing with chronic pain.
This letter was written by member of the California Advocacy Team (sponsored by the US Pain Foundation) to provide comments on the planned updates to the Benchmark plan of California’s Essential Health Benefits. https://tinyurl.com/bdep9pvr
A chronic pain sufferer, Victoria Killian provides her thoughts on the denial of service by a health insurance company.
PERSONAL HEALTH CARE (INCLUDING MATERNAL, CHILD, AND ADOLESCENT) PART 4.5 – PAIN PATIENT’S BILL OF RIGHTS Section 124960. https://law.justia.com/codes/california/code-hsc/division-106/part-4-5/section-124960 124960. The Legislature finds and declares all of the following: (a) The state has a right and duty to control the illegal use of opiate drugs. (b) Inadequate treatment of acute and chronic pain originating from cancer or…
https://www.marylandpainandwellnesscenter.com/blog/five-apps-for-chronic-pain-sufferers You might have found that dealing with chronic pain remotely is easier than heading to a doctor. If so, you might consider looking into an app that helps you track your chronic pain symptoms which you can later share with your provider. Here are five apps designed to help you track your pain. Branch Formerly known…
One of the things I am trying to do is ensure that everyone with chronic pain is aware of the research being done on chronic pain in clinical trials. Attached is the JAMA article on one clinical trial. Although this clinical trial had veterans as participants, I thought the results could potentially apply to anyone.…
https://nationalpain.org/resources-policies-and-guidelines
In Case You Missed It … Here are a few recent articles/blogs and webinar recordings from U.S. Pain team members and volunteers.
https://www.liebertpub.com/doi/10.1089/jpm.2023.0251 Chad D. Kollas, Kevin Ruiz, and Amy Laughlin. Effectiveness of Long-Term Opioid Therapy for Chronic Pain in an Outpatient Palliative Medicine Clinic. Journal of Palliative Medicine. Jan 2024.31-38.http://doi.org/10.1089/jpm.2023.0251 Effectiveness of Long-Term Opioid Therapy for Chronic Pain in an Outpatient Palliative Medicine Clinic Chad D. Kollas , Kevin Ruiz , and Amy Laughlin Published Online:5 Jan…
https://themighty.com/topic/chronic-illness/feeling-like-a-burden-when-you-have-a-chronic-illness/?utm_content=buffer19b10&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
https://themighty.com/topic/chronic-pain/what-doctors-dont-say-about-chronic-pain/?utm_content=buffer1c420&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer When the average person gets sick or injured, they often go to the doctor, expecting to be diagnosed, treated and cured within a matter of days or weeks. Doctors are supposed to be the experts – the people you can trust and turn to for answers and relief from symptoms. Unfortunately, this is not always…
The American Chronic Pain Association (ACPA) is actively involved in various patient engagement efforts aimed at providing support, education, hope, and motivation for individuals living with chronic pain and those treating painful conditions. Here are some key aspects of their efforts: These efforts by the ACPA demonstrate a comprehensive approach to patient engagement, focusing on…
The Alliance for Aging Research offers a program called Talk NERDY (Nurturing Engagement in Research and Development with You) to train patient advocates and stakeholders. This program is designed to educate older adult patients, family caregivers, and others about patient-centered outcomes research (PCOR). The training includes various aspects of clinical trials, such as understanding different…
https://themighty.com/topic/chronic-illness/creating-new-dreams-chronic-illness/?utm_medium=email&utm_campaign=CM_01152024_01162024&utm_source=cordial&cid=5a60ade4132f37e60e101474 “Getting to the next level always requires ending something, leaving it behind, and moving on. Growth itself demands that we move on. Without the ability to end things, people stay stuck, never becoming who they are meant to be, never accomplishing all that their talents and abilities should afford them.” –Henry Cloud, “Necessary Endings”…