Category: PWLE Voices, Issue 2

  • “I Put on an Extrovert Suit”

    ‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Voices in the Room “I Put on an Extrovert Suit” A first-time PWLE attendee on the NIH PURPOSE conference and the U.S. Association for the Study of Pain (USASP) annual meeting — walking in, what changed, and what he’s bringing home. By…

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  • How to Actually Read the ENGAGE Report

    ‹ PWLE Voices — Issue 2 · September 2026 · Pain Awareness Month Series Tools & Resources How to Actually Read the ENGAGE Report Forty-three pages of NIH report, distilled down to the parts a PWLE advocate can actually use. In Issue 1, we introduced the November 2025 NIH ENGAGE report and explained why it…

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  • PWLE Voices – Issue 2

    Pain Awareness Month (1/6)  ·  Issue 2  ·  2026  ·  September 2026 September Is Pain Awareness Month First of six  ·  One community, many conditions. What’s a PWLE? A Person With Lived Experience. The NIH’s November 2025 ENGAGE report describes people and communities partnering with researchers to shape the questions that get asked, the studies…

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